Warrior. 

while speaking to one of my close friends, I took a look back at my condition.
I always hear how strong I can be, how amazing it is that I let nothing get in my way, how I never stop living my life to the fullest. It’s great to hear don’t get me wrong but just with those statements bring me back to the main reasonings why I have to be so strong, why nothing can get in my way, why I have to be insanely obsessed with what brings me peace and also how selfish with my own time I have to be. I will be completely honest, any day I can wake up sicker and back in the hospital, any day this sickness can turn into my worst enemy and become something that can be worse for my body. I always have to keep that in mind and no one wants to wake up feeling like they are a burden on themselves or anyone else. What I have noticed over time is that my parents take the worst of my burden. When your child is born, you just want them to be healthy and grow up healthy. My parents ended up with a sick child. Endless doctors’ visits, endless hospital visits, medication that you cannot even pronounce half of the damn time, needles, surgeries and whatever else you can name. I cannot even explain how much both of my parents have gone through just with me being sick. I admire them so much and nothing would ever change that in my mind. From long nights in the hospital to unexpected calls begging to go to the hospital, my parents always put me first. But it can take a toll on them, it can be overwhelming. When you’re sick, you don’t just worry about yourself but you also worry about everyone around you and how they accept it. Some accept it perfectly and some think you’re lying half of the time when you have to cancel plans or when you have no energy to even get out of bed. Those are the kinds of people I hate, no I’m not lying but then again I have nothing to prove to those people because they don’t know how I’m feeling on the inside and they don’t carry this burden with them. Even as I sit here writing this, I look back on every trial and tribulation I’ve had to go through at such a young age and it is exhausting. Some days I have breakdowns in which I wish my life was never like this and other days I feel like a warrior princess who can take on any battle if I can handle it. Living with any disease is like being on a roller coaster ride with a blindfold on half of the time. You never know what’s coming and you don’t know whether you’ll go up or drop down. I applaud people with chronical illnesses, with diseases, with any little tricky thing going on in their body because all of us are stronger then we could ever imagine being. 

 

With Strength & Concentration,

N. Rarity
*image does not belong to me. Found on geniusquote.org*

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N.Rarity

Nina Marie is a 25 year old Bronx native. She has her bachelor's degree in English Literature and she is working on her master's in Early Childhood Education. She has a love of Disney and animals. She was diagnosed with Budd-Chiari Disorder, Myeloproliferative Disease, and a Jakk-2 Mutation at the age of 19. While going through several surgeries and most doctor's appointments, she realized that the best way to get through this hard time was to put it out in the open. Thank You.

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