Invisible Illness

What is an Invisible Illness? An Invisible Illness is one that is not shown to the world. You cannot recognize that the person is sick or chronically ill but they are.  On Wikipedia, it describes Invisible disabilities as chronic illnesses that can significantly impair normal activities of daily life.  96% of people with chronic illnesses show no outward signs of it.  I am a part of the 96%.  I go through life struggling to even find the strength to wake up some mornings or to even get out of bed.  One day I can feel fine and the next, I could go into an entire flare-up.  A flare-up in my case is when all my symptoms come at once.  So my flare-ups consist of stomach pain, dizziness, migraines, sometimes vomiting, body aches, and feeling extremely weak.  There are days that I may have a flare up and I would still go about my day normally.  I push myself to extreme measures because some days I cannot just give up, some days I have to keep pushing myself to eventually make myself stronger in the long run.  I am a zebra, a spoonie, a rare-disease supporter and advocate. Now, you’re probably wondering what I just said.  Zebra stripes are used as the Rare-Disease ribbon, zebra is also a medical slang term for a rare or surprising diagnosis… hence me.  Now, a spoonie originates from a post written by Christine Miserandino found at the bottom.  This is when you measure your daily tasks by counting spoons.  Maybe sometimes you have a lot of “spoons” or you can come up short, leaving you with no “spoons.”  This is when you try not to mention your pain or discomfort.  If you have a lot of “spoons,” that just means you have energy to run your errands or go about your tasks.  I hear so often how I do not look sick, I look normal, how nothing is wrong with me… that is possibly the worst thing you can tell someone.  Even though I do not look, act, or portray that I am sick, I am.  My body hurts, my legs cramp up, my stomach is always in pain.  Do not try to downgrade my illness just because of my image.

This week was a very interesting one. The last time I visited my doctor was around February or March.  He ran some tests to find that I have lumps on my liver, from what, we have no idea.  So some liver tests keeps rising higher and I guess it may start to be a bother soon if it keeps going up.  Also, my liver collects acid and cannot get rid of it fast enough so I look like a dog with fleas, constantly scratching. So guess who has new medication to take! This girl! I already take two blood thinning pills and now I have to take this medication three times a day, which is going to be extremely hard for me to remember since while writing this I already forgot to take it on my lunch break. But unfortunately, I have to start taking them and actually remembering to.

That’s it for now, thanks for reading.

N.Rarity

 

*Picture is not mine, found on pinterest*

 

The Spoon Theory written by Christine Miserandino – https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Advertisements

Published by

N.Rarity

Nina Marie is a 25 year old Bronx native. She has her bachelor's degree in English Literature and she is working on her master's in Early Childhood Education. She has a love of Disney and animals. She was diagnosed with Budd-Chiari Disorder, Myeloproliferative Disease, and a Jakk-2 Mutation at the age of 19. While going through several surgeries and most doctor's appointments, she realized that the best way to get through this hard time was to put it out in the open. Thank You.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s